It takes both rain and sunshine to see the rainbow. This was created to have friends and family informed on my journey through this dark tunnel. I have entered the tunnel and now have taken the first steps on my way out.
Thursday, June 27, 2013
Raining and cool, sunny and humid, twists and turns of summer
Since my last post , I have had gradually worsening pain in my sternum area. And yes the doctor new about it. The pain started out as a discomfort or like a bruise when you push on it. And even though I'm active, I'm no way in any type of shape or condition of any sorts. Nor do i exercise routinely. So I knew I hadn't injured the area in exercise or any other way. Every three weeks when I see the doctor I would tell him I thought it was getting worse. Most recently I had an X-ray and it didn't show any abnormalities. The pain is now effecting everything I do. Sneezing I try to avoid at all cost.. Coughing too. Lifting things I actually ask for help with now.
So now I have had a C.A.T Scan and I won't get into the madness it took to get the results because that made me really mad. The scan shows the pain is being caused by the pressure from the tumors growth. That's most plain English I can use for you. The liver tumors have grown and there's more of them also.
The game plan is to get this pain under control. So I am currently taking OxyContin . They will increase the dose as needed until its tolerable. And that will be slow going. Wow that stuff is something else. Hard to believe there are people out there wanting to feel this way. I won't have any treatment until the pain is under control. My next one is scheduled for after July 4. The 2nd part of the game plan is to decide if I want to continue on chemotherapy and beating my body up. No easy decision by any means.
I have a paper with questions for the doctor for my next appointment.
Please pray for me and my family as we begin down this path with many twists and turns .
Peace
Kelly
Monday, April 22, 2013
I'm late posting just like spring is late arriving
After my late post in February I thought I would update routinely and on time.....which is only after doctor visits. Well that is what I had been doing anyways.
I had a doctors appointment the last week of March and at that appointment found out that my latest C.A.T. Scan showed growth in the lung mets(tumors), and stable liver mets. So my Dr. and I talked about changing drugs to get a better grasp on these lung mets. The drug is an older chemo but one I have not had. I agreed to switch but not without hesitation because the last two or three drugs have been newer chemo's and with less side effects. I started my new chemo last week Monday and was in bed sleeping for 4 days following.. All day and all night. Nauseated some too. So I'm hoping the side effects lessen each treatment.
Over the past year I have had a fast heart rate. Chemo's can damage heart muscles....I finally asked to see a cardiologist because I would get random chest pains, and sometimes short of breath. I had a stress test done and it came back good. No muscle damage. So now the cardiologist wants me to take some medicine that should slow my rate down....and the side effects...fatigue. I guess I will be getting a lot of rest.
I have a few daffodils and crocus in bloom which remind me spring is here it just doesn't feel like it. I hope everyone enjoy the sunny days that are soon to be in an abundance .
Peace
Kelly
I had a doctors appointment the last week of March and at that appointment found out that my latest C.A.T. Scan showed growth in the lung mets(tumors), and stable liver mets. So my Dr. and I talked about changing drugs to get a better grasp on these lung mets. The drug is an older chemo but one I have not had. I agreed to switch but not without hesitation because the last two or three drugs have been newer chemo's and with less side effects. I started my new chemo last week Monday and was in bed sleeping for 4 days following.. All day and all night. Nauseated some too. So I'm hoping the side effects lessen each treatment.
Over the past year I have had a fast heart rate. Chemo's can damage heart muscles....I finally asked to see a cardiologist because I would get random chest pains, and sometimes short of breath. I had a stress test done and it came back good. No muscle damage. So now the cardiologist wants me to take some medicine that should slow my rate down....and the side effects...fatigue. I guess I will be getting a lot of rest.
I have a few daffodils and crocus in bloom which remind me spring is here it just doesn't feel like it. I hope everyone enjoy the sunny days that are soon to be in an abundance .
Peace
Kelly
Thursday, February 14, 2013
Happy holidays!
Happy Valentines Day! Happy New Year and Merry Christmas!
I can not remember not posting anything since Thanksgiving. I am in shock myself. Sorry for those that follow my blog and that's how you stay updated.
There isn't much you missed quite honestly. I am on another new drug since the one mentioned at the thanksgiving post stopped working to keep the tumors stable. I take this treatment every Monday. However because it makes me very fatigued , starting after spring break I will have treatment for 3 weeks in a row and one week off. That is as long as the cat scan show stable mets. I will have the scan March 18.
It's been two years now since my stage 4 diagnosis. I am so thankful to all of you for your support and prayers. The goal is to keep the tumors from growing as there is no cure. So I will always be on chemotherapy. Every year I survive, the scientist keep coming up with new drugs. As long as there's tools in the bag we are in good shape.
Show your LOVE to those you care most for! Let today be a small reminder of that love.
Peace to you
Kelly
I can not remember not posting anything since Thanksgiving. I am in shock myself. Sorry for those that follow my blog and that's how you stay updated.
There isn't much you missed quite honestly. I am on another new drug since the one mentioned at the thanksgiving post stopped working to keep the tumors stable. I take this treatment every Monday. However because it makes me very fatigued , starting after spring break I will have treatment for 3 weeks in a row and one week off. That is as long as the cat scan show stable mets. I will have the scan March 18.
It's been two years now since my stage 4 diagnosis. I am so thankful to all of you for your support and prayers. The goal is to keep the tumors from growing as there is no cure. So I will always be on chemotherapy. Every year I survive, the scientist keep coming up with new drugs. As long as there's tools in the bag we are in good shape.
Show your LOVE to those you care most for! Let today be a small reminder of that love.
Peace to you
Kelly
Monday, November 19, 2012
Happy Thanksgiving
I hope everyone has a wonderful Thanksgiving! Enjoy yummy food and your family and any others you are gathering with.
I will be starting a new drug on Dec. 3 and if you are a follower of this blog you know that means there has been progression. This new drug i will need to have every week. I have had some nausea during the day randomly, and tired, so the doctor agreed to do the cat scan a month earlier than planned. And I also complained about the lingering cough I have had since I got a cold way back before the week of Halloween.
GIVE and be THANKFUl!
Peace
Kelly
I will be starting a new drug on Dec. 3 and if you are a follower of this blog you know that means there has been progression. This new drug i will need to have every week. I have had some nausea during the day randomly, and tired, so the doctor agreed to do the cat scan a month earlier than planned. And I also complained about the lingering cough I have had since I got a cold way back before the week of Halloween.
GIVE and be THANKFUl!
Peace
Kelly
Wednesday, October 17, 2012
Lots of Color
Since my last post the fall colors have peaked and the leaves are beginning to fall. What a pretty time of the year. Love the temperatures too.
I saw the doctor last week, and the week before that had a CT scan. The scan showed some stable tumors and some small new tumors. I wasn't able to ask questions of any kind because the doctors pager went off and he left the room. AND didn't come back. So before the interruption we discussed staying on the same chemo drug. And staying off the oral chemo drug that was raising my liver enzymes and causing lots of diarrhea. I will continue this regime on two Mondays in a row and one Monday off. Something new that is happening and the Lemmen Holten Center is the doctors or mine at least, is seeing new patients on one of his work days. All other patients see him on his other work days. The bad thing about this for me, is this now has be traveling down on another day of the week.
This past weekend I was in Chicago for a Metastatic Breast Cancer Conference. My sister Kim and Mom joined me . There was a lot of information gained. There was good news in that there is a lot of research being done and it looks promising but the bad news it takes so long to get to the FDA and then for the FDA to approve it. I will be traveling to the Mall of America in a couple of weeks. I have never been there. If you have any suggestions or must do's feel free to email me.
Paul retired from the Wyoming Police Department. He got a new job as Deputy Chief for the city of Grandville. His first day was this past Monday. We are very excited for him. Rachel will be cheering at her last freshmen football game tomorrow and then she will have 2 weeks off before trying out for the competitive cheer team. Emily had her last 7th grade volleyball game yesterday that ended in a win. She wants to try out for a club volleyball team next. James will be signing up for basketball through community ed or the local YMCA.
Happy Harvest to all, Happy Halloween too!
Peace and prayers to you
Kelly
I saw the doctor last week, and the week before that had a CT scan. The scan showed some stable tumors and some small new tumors. I wasn't able to ask questions of any kind because the doctors pager went off and he left the room. AND didn't come back. So before the interruption we discussed staying on the same chemo drug. And staying off the oral chemo drug that was raising my liver enzymes and causing lots of diarrhea. I will continue this regime on two Mondays in a row and one Monday off. Something new that is happening and the Lemmen Holten Center is the doctors or mine at least, is seeing new patients on one of his work days. All other patients see him on his other work days. The bad thing about this for me, is this now has be traveling down on another day of the week.
This past weekend I was in Chicago for a Metastatic Breast Cancer Conference. My sister Kim and Mom joined me . There was a lot of information gained. There was good news in that there is a lot of research being done and it looks promising but the bad news it takes so long to get to the FDA and then for the FDA to approve it. I will be traveling to the Mall of America in a couple of weeks. I have never been there. If you have any suggestions or must do's feel free to email me.
Paul retired from the Wyoming Police Department. He got a new job as Deputy Chief for the city of Grandville. His first day was this past Monday. We are very excited for him. Rachel will be cheering at her last freshmen football game tomorrow and then she will have 2 weeks off before trying out for the competitive cheer team. Emily had her last 7th grade volleyball game yesterday that ended in a win. She wants to try out for a club volleyball team next. James will be signing up for basketball through community ed or the local YMCA.
Happy Harvest to all, Happy Halloween too!
Peace and prayers to you
Kelly
Tuesday, September 18, 2012
Almost 2 months
Sorry for the delay in my posts. I decided that I would update after dr appointments and I have only seen nurse practitioner lately. And until seeing some people that read my blog I was reminded I haven't updated so here goes.
My cat scan on July 5 showed growth of old tumors and quite a few new tumors in my lungs. The liver was stable. Because of the growth in lungs I needed to change to a new infusion chemo and also change from herceptin that I've take since 2007 to tykerb. Both drugs block the cells from dividing. But the change was needed because my body became immune to the herceptin thus the growth. The bad news is tykerb is an oral pill taken at home. 5 horse pills to put it nicely. 5 horse pills that give me diarrhea something awful. Well you can't function in life like that so they lessened the dosage by one pill with no difference in outcome. I then told them I would be on vacation so I stopped taking them while we were in charlevoix . Started back up and had the same side effects so the had me take 2 in am and 2 pm. Well before I could start that dosage my lab work for my liver was raised so they halted the tykerb believing that was the cause. It's been three weeks with out taking it. Good for the bathroom purposes bad that I haven't been taking something that helps the tumors not multiply.
So instill go in for a treatment once a week on Monday's for two weeks the one week off. I'll have a doctors appointment in 3 weeks and will probably get a cat scan scheduled then. As of yesterday's labs my liver counts are coming down but still too high to take meds.
Rachel is cheering freshmen football games and enjoying it along with high school. Emily is loving middle school and all of her classes. She also made the volleyball team. James is enjoying .6th grade and enjoying being the king class of elementary school. He decided to take the year off from football. But found himself being the ball boy at the freshmen football games since we are there watching Rachel.
The pool was closed this past Sunday just in time for this weather change.
As far as take them a meal goes we have decided to keep it disabled since its been going fine with out it. We wanted to try to get back to some normalcy as much as we can. Yes cancer is a normal part of our life. But let's try to do some things without cancer in it. Does that make sense. A few people want to bring a meal and that is awesome thank you. I will message you or call you soon. Thanks for the surprise gift cards to order something for dinner. All so thoughtful.
Paul is working 10 hour shifts still but now no more weekends. He either works m-th or t- fri. He is teaching for Grand rapids cc on Monday and Wednesday nights and for Ferris
s in big rapids on Fridays . Just a tad busy.
My cat scan on July 5 showed growth of old tumors and quite a few new tumors in my lungs. The liver was stable. Because of the growth in lungs I needed to change to a new infusion chemo and also change from herceptin that I've take since 2007 to tykerb. Both drugs block the cells from dividing. But the change was needed because my body became immune to the herceptin thus the growth. The bad news is tykerb is an oral pill taken at home. 5 horse pills to put it nicely. 5 horse pills that give me diarrhea something awful. Well you can't function in life like that so they lessened the dosage by one pill with no difference in outcome. I then told them I would be on vacation so I stopped taking them while we were in charlevoix . Started back up and had the same side effects so the had me take 2 in am and 2 pm. Well before I could start that dosage my lab work for my liver was raised so they halted the tykerb believing that was the cause. It's been three weeks with out taking it. Good for the bathroom purposes bad that I haven't been taking something that helps the tumors not multiply.
So instill go in for a treatment once a week on Monday's for two weeks the one week off. I'll have a doctors appointment in 3 weeks and will probably get a cat scan scheduled then. As of yesterday's labs my liver counts are coming down but still too high to take meds.
Rachel is cheering freshmen football games and enjoying it along with high school. Emily is loving middle school and all of her classes. She also made the volleyball team. James is enjoying .6th grade and enjoying being the king class of elementary school. He decided to take the year off from football. But found himself being the ball boy at the freshmen football games since we are there watching Rachel.
The pool was closed this past Sunday just in time for this weather change.
As far as take them a meal goes we have decided to keep it disabled since its been going fine with out it. We wanted to try to get back to some normalcy as much as we can. Yes cancer is a normal part of our life. But let's try to do some things without cancer in it. Does that make sense. A few people want to bring a meal and that is awesome thank you. I will message you or call you soon. Thanks for the surprise gift cards to order something for dinner. All so thoughtful.
Paul is working 10 hour shifts still but now no more weekends. He either works m-th or t- fri. He is teaching for Grand rapids cc on Monday and Wednesday nights and for Ferris
s in big rapids on Fridays . Just a tad busy.
Wednesday, July 25, 2012
Take Them a Meal
I have disabled the Take Them a Meal schedule for now. Not sure if it will be forever, short term or what. Thank you to everyone for all the great meals and recipes'. We ate well because of all of you.
IT was very nice of all of you to take the time to think of the Anglim's during this journey we have been on. You have touched our hearts as well as our bellies. Thank you so much!
Kelly and the rest of the Anglim's
IT was very nice of all of you to take the time to think of the Anglim's during this journey we have been on. You have touched our hearts as well as our bellies. Thank you so much!
Kelly and the rest of the Anglim's
Saturday, July 14, 2012
Chemo Schedule
Since my chemo drug and chemo schedule will be changing and I don't know what side effects I will have, I am going to hold off on posting any dates that we may need for dinners. Maybe I won't need any. That would be nice. But feel free to check on Take them a Meal and I will post something on there also. Thanks for all your help over the past 17 months. It's been a long road that I would not be able to go down with out all of my family and friends support! Feel free to text me or facebook message me for the password to Take them a Meal!
Peace
Kelly
Peace
Kelly
Thursday, July 12, 2012
Lack of rain but not sunshine
The lack of rain is unbelievable ! I have never seen anything like it. Or should I say I don't remember anything like it.
I received my ct results today. The ct showed increase in size and numbers of tumors in both lungs. More in the right lung than left lung. I have had no respiratory side effects or symptoms. but that doesn't surprise me because I didn't have any symptoms with my double pulmonary embolism either. I told the dr I like to be unique. With the findings of the ct scan I did not have treatment today. I will be switching to a new chemo drug with insurance approval. That will start next week and it is given once a week, two weeks in a row and one week off.
It is disappointing! It's a set back. My body must have been getting immune to the chemo drug. It Is mostly frustrating because I never imagined I would still be having chemo after 17 months. You never want to prepare yourself for that.
The days of summer are passing by. We have a vacation planned with the entire family. Mom and dad and my three siblings families. Going to charlevoix to stay in a cottage that Ernest Hemingway's wedding reception was in. Right on lake charlevoix. It will be "just what the dr ordered".
I hope you are making lots of memories with your loved ones . Stay safe and keep the faith!
Love and peace to all
Kelly
Friday, June 15, 2012
Summer started
The kids are out for the summer and that means parents are running there kids to all their activities. The more kids you have the more you are prrobably running around. I hope yoU can get a break soon and enjoy your summer together relaxing at a beach, pool, campfire, eating ice cream, at a pier,on a boat, camping, at a cottage or other family Favorite spot.
As for an update from me and my health. I have been on the same chemo drugs since last September. It is still treating me good in regards to side effects. Major side effects are a bad headache and no sleep the night I have a treatment. Then tired for two days. I am getting scheduled for a cat scan so that I will have the results before my next dr visit which is in July. Dr said we'll figure the next steps after we get those results.
Family is doing good. Rachel has finished her physical therapy on her knee, and has worked on strengthening her quads so her knee is more stable. She is now entering the high school and has made the freshmen sideline cheer team. Which means she will be cheering for the football team on thursdays. Emily is currently doing a basketball camp through community ed. Next week she will be doing another basketball camp all day. She will be at the middle school and is planning on trying out for the basketball team and swim team and water polo team. She also plays the violin. And is officially taller than her older sister at 5'7. James is entering the 6th grade and will be the top dog in the school. I Can't believe the youngest is in his last year of elementary school. I'll have one at each school. James isn't sure he will sign up for football yet this fall. He will be doing an all day basketball camp next week. He would like to find or form a team to play on in the winter. He is also going to a lacrosse camp towards the end of July.
Paul is done teaching his spring semester class since May and it has been nice to have him home in the evevning. The kids keep him hopping too. He normally teaches for Ferris State University or Grand Rapids Community College in the fall and spring. And also picks up cpr classes to teach too.
Our pool has been used a lot already this summer and spring. We also have our tramp set up. This is our second summer with it. This year we have a safety net around it. Emily wants to use it as a summer sleep out.
Happy Father's Day to all you daddy's out there!
Thank you to everyone praying and thinking of me daily. Thank you for the meals during the rough days following treatment. Thank you for the surprise visits and phone calls another nice things all you wonderful things you great family members and friends do!
Prayers and peace to you
Kelly
Wednesday, April 18, 2012
Change
My latest results are in. There is a slight increase in some areas (tumor size). Isn't that a bummer.I'm going to stay on my current chemo. I have been on this since September. However the schedule is going to changer. Instead of going every two weeks with one week off I'm going to go every two weeks with two weeks off. Just to give me some more off time between treatments.
The doctor summed it up like a baseball game...imagine that. But he said you want to leave the pitcher in as long as you can . And then when needed to go to the bull pen...which is new chemo drug. So for now we are going to keep on the same drug even though we may have loaded the bases or given up a few runs. We are still winning.
My Coumadin levels are therapeutic now so I only have to go to the lab once a week instead of 2 or 3 times. I'm feeling better now that I don't have any clots.
The kids are busy. Rachel just made her Confirmation. She is running track for her middle school. Emily is doing water polo clinics for a few weeks and James isfinishing up with basketball this weekend. Paul is done teaching his night class the first week of May.
We have a niece graduating from MSU in May and a nephew graduating from Lowell High School. We will have a few graduation parties to go to this year with extended family and friends also. And soon we will be celebrating Rachel's birthday and Mom and Dad's 50th wedding Anniversary.
Hope that nice warm air returns soon.
Peace to you all
Thanks for all you do
Love Kelly
The doctor summed it up like a baseball game...imagine that. But he said you want to leave the pitcher in as long as you can . And then when needed to go to the bull pen...which is new chemo drug. So for now we are going to keep on the same drug even though we may have loaded the bases or given up a few runs. We are still winning.
My Coumadin levels are therapeutic now so I only have to go to the lab once a week instead of 2 or 3 times. I'm feeling better now that I don't have any clots.
The kids are busy. Rachel just made her Confirmation. She is running track for her middle school. Emily is doing water polo clinics for a few weeks and James is
We have a niece graduating from MSU in May and a nephew graduating from Lowell High School. We will have a few graduation parties to go to this year with extended family and friends also. And soon we will be celebrating Rachel's birthday and Mom and Dad's 50th wedding Anniversary.
Hope that nice warm air returns soon.
Peace to you all
Thanks for all you do
Love Kelly
Tuesday, April 3, 2012
Not so fast Kelly
So it seems like everything was going so good. The good news from the last scan of having some tumors shrink and no new growth of tumors. The chemo drug being somewhat nice to my body. Taking a family vacation that was so needed and very much relaxing for all.
Three weeks after coming home I find myself in the hospital.
My left calf felt like it was sleeping one day. No big deal. The next day it didn't feel bad at all. This is on Wednesday, I went to watch my nephew Jordan play in his high school baseball game and my leg was fine. I drove about 10 minutes to a restraurant after the game to meet up with my friends.When I got out of my car and started walking to the door of the restraunt,I noticed my leg hurt again and.....I was limping. When I found the table where my friends already were,my friend Barb said..."it looks like your leg is bothering you" I said," It is" and we laughed.
I went home after dinner and Paul rubbed my calf. It didn't bother me to have him put pressure on it. I have had a blood clot befor and it didn't feel like that. I asked Paul what he thought and he said blood clot. Ugh I didn't want it to be. I had plans to go to Birch Run with the kidsand my mom, after they got out of school to start Spring Break the next day. Well when I woke up Thursday morning I could not put any pressure on my foot at ALL. I elevated my leg and did everything I could think of so it would go away. By 11am it was hurting more so Paul brought me to Urgent Care. They said I needed an ultra sound but they didn't have a machine available there so they sent me to the NORTH MEDICAL building across from butterworth. They confirmed that I had a blood clot otherwise known as a DVT. Deep Vein Thrombosis. They called my primary who then said send her to ER. They wheel chaired me to ER where then they put a heart monitor on me and said my heart rate was way high. They wanted to do a cat scan to check my lungs for a blood clot. They asked if I had shortness of breath, dizziness, pain in my chest ;which I answered no to. So off to cat scan I went and low and behold...significant clotting in both lungs. UGH!How can this be. So now they called my oncologist to see what he wanted them to do . So now I have to be admitted. If it was just in my leg they would have sent me home after they taught me to give myself a shot of blood thinning medicine called lovenox. But with the clots in my lungs I needed IV blood thinner hepparin. So here I am 5 days later on the Hepparin still and coumidin (sp) pill. I have to get my blood at the right level of thinning and the right number for coumidin. Maybe today maybe tomorrow I can be released. I'm ready to go home. My leg is much better. The swelling has gone down. It is still sore but not half as sore as it was.
Not the way I or the kids thought we would be spending Spring Break.
Happy Easter to all!
Keep Praying!
Kelly
Three weeks after coming home I find myself in the hospital.
My left calf felt like it was sleeping one day. No big deal. The next day it didn't feel bad at all. This is on Wednesday, I went to watch my nephew Jordan play in his high school baseball game and my leg was fine. I drove about 10 minutes to a restraurant after the game to meet up with my friends.When I got out of my car and started walking to the door of the restraunt,I noticed my leg hurt again and.....I was limping. When I found the table where my friends already were,my friend Barb said..."it looks like your leg is bothering you" I said," It is" and we laughed.
I went home after dinner and Paul rubbed my calf. It didn't bother me to have him put pressure on it. I have had a blood clot befor and it didn't feel like that. I asked Paul what he thought and he said blood clot. Ugh I didn't want it to be. I had plans to go to Birch Run with the kidsand my mom, after they got out of school to start Spring Break the next day. Well when I woke up Thursday morning I could not put any pressure on my foot at ALL. I elevated my leg and did everything I could think of so it would go away. By 11am it was hurting more so Paul brought me to Urgent Care. They said I needed an ultra sound but they didn't have a machine available there so they sent me to the NORTH MEDICAL building across from butterworth. They confirmed that I had a blood clot otherwise known as a DVT. Deep Vein Thrombosis. They called my primary who then said send her to ER. They wheel chaired me to ER where then they put a heart monitor on me and said my heart rate was way high. They wanted to do a cat scan to check my lungs for a blood clot. They asked if I had shortness of breath, dizziness, pain in my chest ;which I answered no to. So off to cat scan I went and low and behold...significant clotting in both lungs. UGH!How can this be. So now they called my oncologist to see what he wanted them to do . So now I have to be admitted. If it was just in my leg they would have sent me home after they taught me to give myself a shot of blood thinning medicine called lovenox. But with the clots in my lungs I needed IV blood thinner hepparin. So here I am 5 days later on the Hepparin still and coumidin (sp) pill. I have to get my blood at the right level of thinning and the right number for coumidin. Maybe today maybe tomorrow I can be released. I'm ready to go home. My leg is much better. The swelling has gone down. It is still sore but not half as sore as it was.
Not the way I or the kids thought we would be spending Spring Break.
Happy Easter to all!
Keep Praying!
Kelly
Thursday, February 9, 2012
A loooong time awaiting!
Today is a Great Day. It's amazing how sunshine, Prayers being answered and Great NEWS from the Doctor can make a day so BEAUTIFUL!
So I had a scan on Monday due to having pain in my rib area. Today I found out the results before my chemo appointment. The Doctor was very hopeful in how the chemo is working. I have had shrinkage in almost all tumors in lungs, and liver. A few have had no change and there were no new tumors or no growth in any that didn't shrink. YEAH!
The downside if that is what it is...no explanation in the rib pain... Oh well for now ...I'll take the shrinkage for sure.
This was my last round planned on this drug. However with this shrinkage the doctor would like to gamble, play a game of chess if you will, and try to see if more treatments would shrink the tumors some more so I am scheduled for 4 more rounds which would put me at the end of May and then another Cat/Pet Scan. Depending on those results, the doctor would like to possibly "zap" the smallest liver tumor to get rid of it. Then go on a maitenace oral chemo drug.
This drug I am on is called Halaven. It wa approved in June or July of 2011 by the FDA and I started it in September. It is made from sea sponge. Look it up online. It is truly amazing. My hair has grown back some but it falls out easily too. The drug does not make me nauseated at all. The side effects are duable to say the least. I am very thankful for a drug that has been easiest on my body and has done a wonderful thing as shrinking my tumors. God knew when I needed this most as I was ready to ask for a stoppage of Chemo. This gives me the strength and hope and Faith to continue on this fight.
All of your support is truley amazing. The littlest things you do are very thoughtful. The big things that you do are unbelievable. We are gracious for everything. The world is a better place because of people like you. Love you all
Love
Kelly
Faith Hope Love
So I had a scan on Monday due to having pain in my rib area. Today I found out the results before my chemo appointment. The Doctor was very hopeful in how the chemo is working. I have had shrinkage in almost all tumors in lungs, and liver. A few have had no change and there were no new tumors or no growth in any that didn't shrink. YEAH!
The downside if that is what it is...no explanation in the rib pain... Oh well for now ...I'll take the shrinkage for sure.
This was my last round planned on this drug. However with this shrinkage the doctor would like to gamble, play a game of chess if you will, and try to see if more treatments would shrink the tumors some more so I am scheduled for 4 more rounds which would put me at the end of May and then another Cat/Pet Scan. Depending on those results, the doctor would like to possibly "zap" the smallest liver tumor to get rid of it. Then go on a maitenace oral chemo drug.
This drug I am on is called Halaven. It wa approved in June or July of 2011 by the FDA and I started it in September. It is made from sea sponge. Look it up online. It is truly amazing. My hair has grown back some but it falls out easily too. The drug does not make me nauseated at all. The side effects are duable to say the least. I am very thankful for a drug that has been easiest on my body and has done a wonderful thing as shrinking my tumors. God knew when I needed this most as I was ready to ask for a stoppage of Chemo. This gives me the strength and hope and Faith to continue on this fight.
All of your support is truley amazing. The littlest things you do are very thoughtful. The big things that you do are unbelievable. We are gracious for everything. The world is a better place because of people like you. Love you all
Love
Kelly
Faith Hope Love
Monday, January 9, 2012
Happy New Year
Hope everyone has a great 2012.
Everything is status quo for me. Still doing infusion chemo, and the same drug since September I believe. the side effects have been a migraine for two days after treatment day. Constipation and Diarrhea and of course tiredness. All a lot better than any other chemo drug I have been given. And my hair is growing back also.I will have my next scan after my treatment in February and than make the next plan of action according to the results.
Family update is Emily is playing basketball for the first time. She is having fun with it. Rachel is still doing competitive cheer. There are 4 more competitions left. She sprained her knee and may not be participating in those competitions. Dr said possibly two weeks of doing nothing. James is still playing basketball through community ed on Saturdays also. Paul is starting to teach again twice a week starting this Tuesdays. Paul and myself are enjoying the mild winter. The kids not so much. I keep telling them not to worry. It has not never snowed in Michigan .
Praying for you to have a Healthy, Happy, Loving, New Year!
Peace to you
Kelly
Everything is status quo for me. Still doing infusion chemo, and the same drug since September I believe. the side effects have been a migraine for two days after treatment day. Constipation and Diarrhea and of course tiredness. All a lot better than any other chemo drug I have been given. And my hair is growing back also.I will have my next scan after my treatment in February and than make the next plan of action according to the results.
Family update is Emily is playing basketball for the first time. She is having fun with it. Rachel is still doing competitive cheer. There are 4 more competitions left. She sprained her knee and may not be participating in those competitions. Dr said possibly two weeks of doing nothing. James is still playing basketball through community ed on Saturdays also. Paul is starting to teach again twice a week starting this Tuesdays. Paul and myself are enjoying the mild winter. The kids not so much. I keep telling them not to worry. It has not never snowed in Michigan .
Praying for you to have a Healthy, Happy, Loving, New Year!
Peace to you
Kelly
Thursday, December 15, 2011
Merry Christmas
Happy Holidays Everyone,
I've had one Dr appointment since my last post. It was just as routine as all the rest are with out having results because no scans were done. It's a little no actually becoming a fight to go these days. The Dr says he'll schedule another scan in or just before February. No reason to do any scans prior to that since he's planning on doing treatments until February 9. After we get the results from the scans we will decide what path to take. More treatments or be done with treatments. Feb 9 is my dad's birthday. Wouldn't that be a nice birthday present for dad. To tell him that I don't have to have treatments anymore. Unwrapped presents are always the best. If I don't have to have infusion treatments I believe I would be put on oral chemo drug that I would take at home. That is what was mentioned when I started chemotherapy anyway.
Side effects are about the same since I started this drug. For 2 or 3 days after treatment I have a major head ache. Bone achiness for 24 hours. Short fuzzed is the major side effect that effects everyone around me. Not sure how long that lasts. Any length is too long. That's all I really have to report on the health front.
Family update is a little different than the last post. Emily is now doing basketball and not swimming. This is her first time playing.. She is tall for her age so I guess she was recruited after a night at open gym which she had a great time at. Her games will be on Saturday morning ! So nothing lighten up on the family schedule on Saturdays. After Christmas break James will have basketball practice , Emily will have basketball games , and Rachel will have cheer competitions. Luckily Paul has the 4 Saturdays off in January off so we can divywill up being 3 places at once.
Everyone traveling away for the Holidays please be safe. I hope everyone has a wonderful, peaceful Holiday season.
What songs do you enjoy listenting to at this Joyful time of year? My favorite o nes are
Silent Night!
Joy to the World
The little drummer boy
Kelly
I've had one Dr appointment since my last post. It was just as routine as all the rest are with out having results because no scans were done. It's a little no actually becoming a fight to go these days. The Dr says he'll schedule another scan in or just before February. No reason to do any scans prior to that since he's planning on doing treatments until February 9. After we get the results from the scans we will decide what path to take. More treatments or be done with treatments. Feb 9 is my dad's birthday. Wouldn't that be a nice birthday present for dad. To tell him that I don't have to have treatments anymore. Unwrapped presents are always the best. If I don't have to have infusion treatments I believe I would be put on oral chemo drug that I would take at home. That is what was mentioned when I started chemotherapy anyway.
Side effects are about the same since I started this drug. For 2 or 3 days after treatment I have a major head ache. Bone achiness for 24 hours. Short fuzzed is the major side effect that effects everyone around me. Not sure how long that lasts. Any length is too long. That's all I really have to report on the health front.
Family update is a little different than the last post. Emily is now doing basketball and not swimming. This is her first time playing.. She is tall for her age so I guess she was recruited after a night at open gym which she had a great time at. Her games will be on Saturday morning ! So nothing lighten up on the family schedule on Saturdays. After Christmas break James will have basketball practice , Emily will have basketball games , and Rachel will have cheer competitions. Luckily Paul has the 4 Saturdays off in January off so we can divywill up being 3 places at once.
Everyone traveling away for the Holidays please be safe. I hope everyone has a wonderful, peaceful Holiday season.
What songs do you enjoy listenting to at this Joyful time of year? My favorite o nes are
Silent Night!
Joy to the World
The little drummer boy
Kelly
Friday, November 18, 2011
Give Thanks
Thanksgiving is near. What are you thankful for?
I sit here a wake in the middle of night. Thinking of what to post on this blog. Today was my treatment day, yesterday was my Dr appointment. I found out the results of my MRI of the brain and ct scan of my chest and abdomen. The news is they found that I did have a brain and it does not have any cancer in it. I'm thankful for that. My CT scan showed stability again. I'm thankful for that. My tumor marker, a blood test showed a decrease! That is great news. This is the first time it has dropped after 4 different drugs...I'm thank ful for that.
Thank you God for listening to all my prayers and to all the prayers said for me.
I'm thankful for the medicine that is being created everyday to help all diseases.
I'm ever so thankful for everyone that is playing a part in the journey that I am on. *I could never mention every ones name.* chemo brain or no chemo brain.
James, Emily , Rachel I'm so thankful for. They are understanding and wise beyond their years. Love them so much.
Paul the best care giver a wife could ask for. Doing above and beyond as a dad and husband.Love Him !
And another Thank you to those that helped plan and organize the wonderful benefit that was a huge success because of all the people that donated, and attended.
And last but not least everyone at Lemmen Holten Cancer Center that help those of us diagnosed with tis little "c" called cancer.
Heres to all of you family and friends that have helped me stay strong along this journey. I'm thankful for all of you.
As far as my chemo treatments I asked how many more rounds and the Dr said after a long sigh. I don't have a number. And then said something I had not heard before. "this is a long process" . "we are finding that the longer it takes to go away...the longer it stays away. Sounds great that I'm on that trail. BUT c'mon now. This gets old after 10 months. A normal feeling I would think. Not knowing answers are always fearful and frustrating. I'm fighting to get off the infusion stage and get on those oral chemo pills that have not been mentioned lately.
updates on the family are Rachel has been working on getting her back hand spring and came home today saying she did it on the springy(tumble track) by herself. Very excited about that for her. Her first competition is Dec 3. Her first 8th grade report card will come home soon. She is doing well academically. Emily has adjusted well to 6th grade. Having class switches and more homework. Age Group swim will start after Thanksgiving and she is excited about that. James is signed up for Saturday basketball where they practice for an hour and then split into teams and play games for an hour. He has been doing good in school too. Paul has tomorrow and then the one more Friday class to teach and he will have about a month and a half off before the next round of teaching starts.. But this time its only 2 hours a day twice a week.
Thank you for reading my blog and giving support in the way that you do.
Thank you for who you are in my life!
Peace to you!
Kelly
I sit here a wake in the middle of night. Thinking of what to post on this blog. Today was my treatment day, yesterday was my Dr appointment. I found out the results of my MRI of the brain and ct scan of my chest and abdomen. The news is they found that I did have a brain and it does not have any cancer in it. I'm thankful for that. My CT scan showed stability again. I'm thankful for that. My tumor marker, a blood test showed a decrease! That is great news. This is the first time it has dropped after 4 different drugs...I'm thank ful for that.
Thank you God for listening to all my prayers and to all the prayers said for me.
I'm thankful for the medicine that is being created everyday to help all diseases.
I'm ever so thankful for everyone that is playing a part in the journey that I am on. *I could never mention every ones name.* chemo brain or no chemo brain.
James, Emily , Rachel I'm so thankful for. They are understanding and wise beyond their years. Love them so much.
Paul the best care giver a wife could ask for. Doing above and beyond as a dad and husband.Love Him !
And another Thank you to those that helped plan and organize the wonderful benefit that was a huge success because of all the people that donated, and attended.
And last but not least everyone at Lemmen Holten Cancer Center that help those of us diagnosed with tis little "c" called cancer.
Heres to all of you family and friends that have helped me stay strong along this journey. I'm thankful for all of you.
As far as my chemo treatments I asked how many more rounds and the Dr said after a long sigh. I don't have a number. And then said something I had not heard before. "this is a long process" . "we are finding that the longer it takes to go away...the longer it stays away. Sounds great that I'm on that trail. BUT c'mon now. This gets old after 10 months. A normal feeling I would think. Not knowing answers are always fearful and frustrating. I'm fighting to get off the infusion stage and get on those oral chemo pills that have not been mentioned lately.
updates on the family are Rachel has been working on getting her back hand spring and came home today saying she did it on the springy(tumble track) by herself. Very excited about that for her. Her first competition is Dec 3. Her first 8th grade report card will come home soon. She is doing well academically. Emily has adjusted well to 6th grade. Having class switches and more homework. Age Group swim will start after Thanksgiving and she is excited about that. James is signed up for Saturday basketball where they practice for an hour and then split into teams and play games for an hour. He has been doing good in school too. Paul has tomorrow and then the one more Friday class to teach and he will have about a month and a half off before the next round of teaching starts.. But this time its only 2 hours a day twice a week.
Thank you for reading my blog and giving support in the way that you do.
Thank you for who you are in my life!
Peace to you!
Kelly
Tuesday, November 1, 2011
Felt within the Heart!
The best and most beautiful things in the world cannot be seen or even be touched. They must be felt within the heart! I hope you were able to experience the best and most beautiful things this past Saturday because I sure did. Amazing! Thank you for all that helped with the benefit in anyway that you did. I seen people from bits of my life. Aunts and Uncles that I don't get to see as often as I should. Cousins that I haven't seen. People from my childhood neighborhood. My elementary school, high school friends, church friends, work friends, Paul's friends, the kids' friends, softball friends, neighbor friends, Brothers and sisters friends. Mom and Dad's friends. What a beautiful night you made it be. Thank You All!
I had a Dr appointment last week and I am going to have a CT scan and an MRI this month. I was at the appointment by myself so I told the Dr that Paul would want me to tell him that I am more forgetful now. We agreed to do the MRI of the brain to rule out no signs of cancer there. I'm confident it's just the "CHEMO Brain." and having the test done will put every one's mind at ease now that you know I'm having it done. Other than that things are status quo. I don't have any new signs or symptoms. My hip still bothers me more sometimes than others but mostly it isn't too bad. Treatments are tolerable. I get a headache for 3 days and few mild bone pains but tolera ble. Let's just hope it isn't as nice to the tumors.
Oh yes and then there is my eye sight . My eye sight problems have been resolved for now. The glasses I was putting on to see were actually making things worse. And this was going on for 3 or 4 weeks. I was feeling a little dizzy every now and then. I couldn't read words on the TV. I couldn't read the score board and football games. I couldn't read player numbers from the stands. I couldn't read road signs but I was driving. Scary I know. This past June my eyes changed for the worse some due to age and some due to the drugs but either way I needed stronger glasses. My prescription was a +5.25 I think for both eyes. And the new prescription was a +7. And now its October and the eye Dr tells me I'm right . The glasses are illegal for me to use to drive . I thought he was going to tell me I couldn't dive any more. But no wait....my eyes are actually better. Better than a +5 even. So after spending the bucks on progressive lenses in June I get to do it again. And new contacts too but I'm only buying a box at a time in case they change again. Some chemo drugs can do that ....so now I know.
Rachel is now busy with competitive cheer leading. Practice everyday. Tournaments on Saturday starting in December. Emily's has started swim stroke clinics. Those are just on Saturday mornings. James is currently not doing anything. Probably basketball soon. Halloween was a bit different this year for the Anglim's. Ever since my sisters kids were old enough to trick or treat which has been about 20 + years we have gathered at some one's house for pizza and the little kids going out trick or treating. And for the past ? IDK how many years maybe 10. The Anglim's/Crafts and Drakes have been coming to OUR house. Well this year James was invited for pizza and trick or treating with a friend. Emily went with a group of friends and Rachel wasn't sure if she was going out or not until she got on the bus Halloween morning. Paul was teaching a night class so it was just me at home to pass out the candy. So I built a fire in the fire pit in the driveway and passed out candy that way. My neighbor came and helped me get it started and visited for a bit.
Enjoy the sunshine that we have been having. It's shineing today! All of us here in Michigan know it won't be long and it will be hididng for quite some time.
May God bless all of you!
Kelly
I had a Dr appointment last week and I am going to have a CT scan and an MRI this month. I was at the appointment by myself so I told the Dr that Paul would want me to tell him that I am more forgetful now. We agreed to do the MRI of the brain to rule out no signs of cancer there. I'm confident it's just the "CHEMO Brain." and having the test done will put every one's mind at ease now that you know I'm having it done. Other than that things are status quo. I don't have any new signs or symptoms. My hip still bothers me more sometimes than others but mostly it isn't too bad. Treatments are tolerable. I get a headache for 3 days and few mild bone pains but tolera ble. Let's just hope it isn't as nice to the tumors.
Oh yes and then there is my eye sight . My eye sight problems have been resolved for now. The glasses I was putting on to see were actually making things worse. And this was going on for 3 or 4 weeks. I was feeling a little dizzy every now and then. I couldn't read words on the TV. I couldn't read the score board and football games. I couldn't read player numbers from the stands. I couldn't read road signs but I was driving. Scary I know. This past June my eyes changed for the worse some due to age and some due to the drugs but either way I needed stronger glasses. My prescription was a +5.25 I think for both eyes. And the new prescription was a +7. And now its October and the eye Dr tells me I'm right . The glasses are illegal for me to use to drive . I thought he was going to tell me I couldn't dive any more. But no wait....my eyes are actually better. Better than a +5 even. So after spending the bucks on progressive lenses in June I get to do it again. And new contacts too but I'm only buying a box at a time in case they change again. Some chemo drugs can do that ....so now I know.
Rachel is now busy with competitive cheer leading. Practice everyday. Tournaments on Saturday starting in December. Emily's has started swim stroke clinics. Those are just on Saturday mornings. James is currently not doing anything. Probably basketball soon. Halloween was a bit different this year for the Anglim's. Ever since my sisters kids were old enough to trick or treat which has been about 20 + years we have gathered at some one's house for pizza and the little kids going out trick or treating. And for the past ? IDK how many years maybe 10. The Anglim's/Crafts and Drakes have been coming to OUR house. Well this year James was invited for pizza and trick or treating with a friend. Emily went with a group of friends and Rachel wasn't sure if she was going out or not until she got on the bus Halloween morning. Paul was teaching a night class so it was just me at home to pass out the candy. So I built a fire in the fire pit in the driveway and passed out candy that way. My neighbor came and helped me get it started and visited for a bit.
Enjoy the sunshine that we have been having. It's shineing today! All of us here in Michigan know it won't be long and it will be hididng for quite some time.
May God bless all of you!
Kelly
Friday, October 21, 2011
Delay
Sorry in the delay of this post. I am having some sight issues so I have delayed getting on the computer. I have to zoom the page to be able to read the computer screen. This decline in my eyesight is due from chemo and its the second time its happened since starting chemo in February. I'm going to the eye doctor today to get a new prescription.
It's been about two weeks since I seen the doctor. The plan he says is to do 4 rounds of the drug and then do a scan and then do another 4 rounds . If the scan shows a need to change the plan then he will do that accordingly. One round equals 3 weeks. I never imagined having chemo for an entire year straight. And now that I type that I should say I never planned on having chemo this long either. Yes I know its a good thing to be able to have it and all but the positive me should have beaten the odds and been done already. It gets old.
This week is the end of the fall sports for James and Rachel. Monday starts tryouts for Rachel for competitive cheer. Emily will finally start her swim clinics on Saturdays. James will get a break for a while.
Paul is still teaching his classes. This week has been busy for him. He has been helping with the planning of Officer Slot's funeral. Its overwhelming to see how the police and fire departments come together to help their fellow family members (officers) in a time of need. Paul did know officer Trevor and I knew his family through Northview High School.
The weather is changing on us. Are you ready? I was hoping for a mild Halloween but I think its going to take more than my hope. This wind is reminding me of some harsh winters we've had in the past.
If you see Paul in the coming days.....wish him a happy 50th.... Oct 24th.
Thank you to all of you that have brought a nice warm meal over. On my bad days which are less than previous treatments they have been very helpful. Thank you to all that have prayed, and thought of us too.
Next treatment and Dr visit is next Thursday.
Happy Halloween if I don't post before then.
Peace
Kelly
It's been about two weeks since I seen the doctor. The plan he says is to do 4 rounds of the drug and then do a scan and then do another 4 rounds . If the scan shows a need to change the plan then he will do that accordingly. One round equals 3 weeks. I never imagined having chemo for an entire year straight. And now that I type that I should say I never planned on having chemo this long either. Yes I know its a good thing to be able to have it and all but the positive me should have beaten the odds and been done already. It gets old.
This week is the end of the fall sports for James and Rachel. Monday starts tryouts for Rachel for competitive cheer. Emily will finally start her swim clinics on Saturdays. James will get a break for a while.
Paul is still teaching his classes. This week has been busy for him. He has been helping with the planning of Officer Slot's funeral. Its overwhelming to see how the police and fire departments come together to help their fellow family members (officers) in a time of need. Paul did know officer Trevor and I knew his family through Northview High School.
The weather is changing on us. Are you ready? I was hoping for a mild Halloween but I think its going to take more than my hope. This wind is reminding me of some harsh winters we've had in the past.
If you see Paul in the coming days.....wish him a happy 50th.... Oct 24th.
Thank you to all of you that have brought a nice warm meal over. On my bad days which are less than previous treatments they have been very helpful. Thank you to all that have prayed, and thought of us too.
Next treatment and Dr visit is next Thursday.
Happy Halloween if I don't post before then.
Peace
Kelly
Monday, September 19, 2011
Saturday, September 17, 2011
CHANGES
I have devided to try Take Them A Meal website and put a link on the side of the blog if you are interested. The password is 3013. Let me know what you think. My emaiil is kanglim@sbcglobal.net
Have a good weekend. The sun is looking nice out there. How about them Tigers! Cmon Lions!
Peace
Kelly
Have a good weekend. The sun is looking nice out there. How about them Tigers! Cmon Lions!
Peace
Kelly
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